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The present General Conditions regulate the use of the Internet Website www.indrenetwork.com (hereinafter website) that the Association of volunteers in favour of Dravet Syndrome "Apoyodravet" (hereinafter ApoyoDravet) makes available to interested parties.

ApoyoDravet reserves the right to modify the present General Conditions at any time, as well as any other modified conditions or instructions to this website. Likewise, ApoyoDravet reserves the right to suspend, interrupt or stop operating this website at any time.

The content of this website is the intellectual property of ApoyoDravet.

All industrial and intellectual property rights on this website are legally reserved. Likewise, access to this website or its use by its users should not be considered as the granting of any use or right license on any asset whose title or ownership corresponds to ApoyoDravet.

Legal information

This website is owned by the Association of volunteers in favour of Dravet Syndrome "Apoyodravet" C / Merkezabal 34, 1st D Donostia 20009, with CIF G-75132506, registered in the General Registry of Associations of the Basque Country with the number AS / G / 1942/2015.

Acceptance of the Legal Notice

The present Legal Notice regulates the use of information and connection services that ApoyoDravet makes available to users of the Internet through the Website.

The access and use of the Website by the User implies the acceptance of its entirety and enforces the compliance with the terms and conditions contained in this Legal Notice, as well as in the Portal's Privacy Policy (see on site Web) Likewise, we inform the User that in order to participate in the services and functionalities that ApoyoDravet provides through the website, it will be necessary to comply with the registration requirements established.

Asimismo, ponemos en conocimiento del Usuario que para poder participar en los servicios y funcionalidades que ApoyoDravet proporciona a través del sitio Web, será necesario previamente cumplir con los requisitos de registro que se establezcan.

The services provided are governed, apart from this Legal Notice, by the general terms and conditions that the User has to accept prior to registering as a registered user.

Terms and Conditions

Access to the website is free, except for the cost of the connection through the telecommunications network provided by the access provider contracted by the users. The solidarity products offered through the online store of the website have their price indicated in the corresponding section and in no case are they offered free of charge.

The provision of the website service has a duration limited to the moment in which the User is connected to it.

Therefore, the User must carefully read this Privacy Policy in each of the occasions in which he intends to use the Website, since this and its conditions of use, included in this Privacy Policy, may undergo modifications.

The User undertakes not to use the Website for fraudulent purposes, as well as not to carry out any conduct that could damage the image, interests and rights of ApoyoDravet or third parties. Likewise, the User undertakes not to perform any act in order to damage, disable or overload the Website, or that prevents or hinders, in any way, the normal use and operation thereof.

The User is informed that in case of breach of the content of this Legal Notice, of the privacy policy, of the Conditions of Use or of any other particular terms or conditions included in the website, ApoyoDravet reserves the right to limit, suspend or terminate the access to the Website, adopting any technical measure that is necessary for that purpose. Likewise, Apoyodravet reserves the possibility of exercising such measures in the event that it reasonably suspects that the User is violating any of the terms and conditions set forth in the aforementioned instruments.

Finally, we inform the User that ApoyoDravet reserves the right to decide, at all times, on the continuity of the services of the information society provided through the Portal.

Industrial and intellectual property

All texts, images, sound, files, brands, logos, colour combinations, or any other element, its structure and design, presentation of the materials included in it, are protected by industrial and intellectual property rights.

It is strictly forbidden to carry out, without the prior consent, any manipulation or alteration of this page, assuming ApoyoDravet no derived responsibility, nor any that could be derived, from said manipulation or alteration by third parties.

In particular, the reproduction, except for private use, the transformation, distribution, public communication, making available to the public and in general any other form of exploitation, by any procedure, of all or part of the contents of this website are prohibited, as well as of its design and the selection and presentation of the materials included in it. These acts of exploitation can only be carried out if the express authorization is provided and as long as explicit reference is made to the ownership of ApoyoDravet of the indicated intellectual property rights.

In the same way, it is prohibited to decompile, disassemble, reverse engineer, sublicense or transmit in any way, translate or carry out works derived from the computer programs necessary for the operation, access and use of this Web site of the services contained therein. The user of the website must refrain in any case from deleting, altering, evading or manipulating any of the protection devices or security systems that may be installed in it.

The use of the website by the User does not imply the transfer of any intellectual and / or industrial property rights to the Website, the Contents and / or the distinctive signs of ApoyoDravet. For this purpose, by means of this Legal Notice, except in those cases in which it is legally permitted or through prior authorization of ApoyoDravet, it is expressly forbidden to the User the reproduction, transformation, distribution, public communication, making available, extraction and / or reuse of the Website, its contents and / or the distinctive signs of the AECC (Spanish Cancer Association) or any other commercial uses thereof.

ANNEX TO LEGAL NOTICE "DONATION"

1. WHO IS RESPONSIBLE FOR THE TREATMENT?

In accordance with current regulations, the interested party is informed that the data provided will be processed by the Association of volunteers in favour of Dravet Syndrome ApoyoDravet.

2. FOR WHAT PURPOSE WILL YOUR PERSONAL DATA BE TREATED AND FOR HOW LONG?

When users provide personal data through the donation form, the purpose is to manage the donation processes and the legal procedures that this entails (institutional declaration, tax certification). For this, your data will be processed in the current and subsequent year, and then your data will be kept for a legal period of five years.

3. WHAT IS THE LEGITIMATION OF DATA PROCESSING?

Your data will be treated on the basis of the reading and completion of the form, of privacy policies, legal notice and any warnings warranted.

4. COMMUNICATION

We inform donors that they may receive communications, for the purpose of monitoring and influencing their donation.

5. OTHER DATA RECIPIENTS

Your personal data may be communicated to the collaborating entities of ApoyoDravet in the economic management of the entity and in its interlocution with the administrations, with the sole purpose of fulfilling the legal obligations that the donation process entails.

Likewise, we inform interested parties that their personal data will not be subject to international transfers. In the event that international transfers are made, ApoyoDravet will seek your express consent to do so.

6. RIGHTS

Interested parties providing personal data have the right to access, rectify and delete their personal data, as well as other rights that assist them, as explained in the Privacy Policy.

7. ADDITIONAL INFORMATION

The interested parties may expand the information contained in this notice by accessing our Privacy Policy, where they will be able to know all the details of the rights that assist them, as well as other relevant aspects for the processing of their personal data.

ANNEX B LEGAL NOTICE "NEWSLETTER form"

1. WHO IS RESPONSIBLE FOR THE TREATMENT?

In accordance with current regulations, the interested party is informed that the data provided will be processed by the Association of volunteers in favour of Dravet Syndrome ApoyoDravet.

2. FOR WHAT PURPOSE WILL YOUR PERSONAL DATA BE TREATED AND FOR HOW LONG?

When users provide personal data through the NEWSLETTER form, the purpose is to manage the registration in that service. For this, your data will be processed until you communicate your willingness to unsubscribe as a user of the service and subsequently your data will be kept for a legal period of five years.

3. WHAT IS THE LEGITIMATION OF DATA PROCESSING?

Your data will be treated on the basis of the execution of the contract: without the processing of your personal data, it would not be possible to register and manage your reception of the service.

4. DATA RECIPIENTS

Your personal data may only be communicated to entities that manage the newsletter service following the current privacy and data protection legislation and with the objective of adequately complying with the legal obligations and / or the purposes indicated.

Likewise, we inform interested parties that their personal data will not be subject to international transfers.

5. RIGHTS

Interested parties providing personal data have the right to access, rectify and delete their personal data, as well as other rights that assist them, as explained in the Privacy Policy.

6. ADDITIONAL INFORMATION

The interested parties may expand the information contained in this notice by accessing our Privacy Policy, where they will be able to know all the details of the rights that assist them, as well as other relevant aspects for the processing of their personal data.

The Apoyodravet Association (AD) central pillars are social innovation, patient-oriented technology and the promotion of research in the service of disease modification.

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